Leukemia & Lymphoma Society does not meet the following 1 Standards for Charity Accountability:
Standard 7 (Board Approval of Written Report on Effectiveness)
Submit to the organization's governing body, for its approval, a written report that outlines the results of the aforementioned performance and effectiveness assessment and recommendations for future actions.
LLS does not meet this Standard because:
- The organization has not completed an effectiveness assessment in the last two years.
Leukemia & Lymphoma Society meets the remaining 19 Standards for Charity Accountability.
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Year, State Incorporated
1949, NY
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Affiliates
BeatAML LLC
LLS PedAL Initiative LLC
LLS TAP LLC
LLS TAP X4, LLC
The LLS Research Programs, Inc.
The LLS Research Foundation
The LLS of Canada
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Stated Purpose
"to cure leukemia, lymphoma, Hodgkin?s disease and myeloma, and improve the quality of life of patients and their families."
Leukemia & Lymphoma Society (LLS) reports that it is dedicated to finding blood cancer cures and advancing access to treatment. The organization is a source of free blood cancer information, education and support for patients, survivors, families, and health care professionals. LLS states that it helps patients navigate their cancer treatments and ensures they have access to quality, affordable, and coordinated care. The organization also states that it advocates for policies at the state and federal level, and works to remove barriers to care for blood cancer patients. Some ($9,965,000 or 3%) of LLS' program activities are carried out in conjunction with fundraising appeals.
For the year ended June 30, 2020, Leukemia & Lymphoma Society's program expenses were:
Patient and community service |
$203,547,000 |
Research |
$50,440,000 |
Public health education |
$48,089,000 |
Professional education |
$16,011,000 |
Total Program Expenses: |
$318,087,000 |
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Chief Executive
Louis J. DeGennaro,Ph.D., President and Chief Executive Officer
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Compensation*
$825,885
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Chair of the Board
Ralph Lawson
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Chair's Profession / Business Affiliation
Former Executive Vice President and Chief Financial Officer, Baptist Health South Florida
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Board Size
20
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Paid Staff Size
1377
*2019 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
Method(s) Used:
Direct mail appeals, Grant proposals, Internet, Invitations to fund raising events, Planned giving arrangements, Print advertisements (newspapers, magazines, etc.), Telephone appeals, Radio, Cause- related marketing (affinity credit cards, consumer product sales, etc.), Television
LLS incurred joint costs of $17,748,000 for informational materials and activities that included fundraising materials. Of those costs $9,965,000 was allocated to program expenses and $7,783,000 was allocated to fundraising expenses.
Fundraising costs were 11% of related contributions. (Related contributions, which totaled $441,930,000, are donations received as a result of fundraising activities.)
This organization is tax-exempt under section 501(c) (3) of the Internal Revenue Code.It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
The following information is based on Leukemia & Lymphoma Society's audited financial statements - consolidated for the year ended June 30, 2020.
Source of Funds |
Campaign contributions, net |
$248,524,000 |
Co-pay contributions |
$176,100,000 |
Therapy acceleration program contractual returns and royalties |
$21,565,000 |
Service revenue |
$15,997,000 |
Donated services, goods and media |
$8,926,000 |
Legacies and other revenue |
$8,380,000 |
Interest and dividend income, net |
$7,359,000 |
Total Income |
$486,851,000 |
- Programs: 78%
- Fundraising: 12%
- Administrative: 10%
Total Income |
$486,851,000 |
Program expenses |
$318,087,000 |
Fundraising expenses |
$46,643,000 |
Administrative expenses |
$43,757,000 |
Other expenses |
$0 |
Total expenses: |
$408,487,000 |
Income in Excess of Expenses |
$78,364,000 |
Beginning Net Assets |
$274,069,000 |
Other Changes In Net Assets |
$21,098,000 |
Ending Net Assets |
$373,531,000 |
Total Liabilities |
$217,648,000 |
Total Assets |
$591,179,000 |
Note 1: As noted in the above financial section, "other changes in net assets" refers to a net increase in fair value of investments ($21,402,000) and a foreign currency translation adjustment and other (-$304,000).
Note 2: According to the organization's audited financial statements - consolidated - for the year ended June 30, 2020, LSS received in-kind contributions totaling $8,926,000 in the form of media ($5,280,000), family support group facilitator and research grant reviewer services ($2,713,000), and goods ($933,000).