Cure HHT reports that it provides patient and physician education about HHT awareness, diagnosis, and treatments through conferences, professional association meetings, and website and telephone interactions. The organization states that it collaborates with multidisciplinary HHT treatment centers worldwide while advocating for patient access to these centers. Cure HHT also works to fund research to find better treatments for a cure. In 2017, the organization reports that it sponsored and funded the 12th HHT International Scientific Conference, produced over 30 webinars with experts in the field, and increased its online Find a Doctor directory to over 500 physicians.
For the year ended June 30, 2017, Cure HHT's program expenses were:
Research |
$372,810 |
Education |
$324,473 |
Public information |
$309,663 |
Advocacy |
$42,205 |
Total Program Expenses: |
$1,049,151 |
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Chief Executive
Marianne S. Clancy, RDH, MPA, Executive Director
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Compensation*
$164,201
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Chair of the Board
Terry Thompson
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Chair's Profession / Business Affiliation
Chief Operations Officer, Ropes & Gray LLP
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Board Size
17
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Paid Staff Size
8
*2016 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
Method(s) Used:
Direct mail appeals, Grant proposals, Internet, Invitations to fund raising events, Membership appeals, Planned giving arrangements, Cause- related marketing (affinity credit cards, consumer product sales, etc.)
Fundraising costs were 27% of related contributions. (Related contributions, which totaled $753,829, are donations received as a result of fundraising activities.)
This organization is tax-exempt under section 501(c) (3) of the Internal Revenue Code.It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
The following information is based on Cure HHT's audited financial statements for the year ended June 30, 2017.
Source of Funds |
Contributions |
$617,091 |
Conference and other revenue |
$254,977 |
Special events, net |
$136,738 |
Realized and unrealized gains on investments |
$27,410 |
Dividends and interest income, net |
$8,741 |
Appreciation of cash surrender value of life insurance |
$879 |
Total Income |
$1,045,836 |
- Programs: 78%
- Fundraising: 15%
- Administrative: 7%
Total Income |
$1,045,836 |
Program expenses |
$1,049,151 |
Fundraising expenses |
$201,346 |
Administrative expenses |
$97,622 |
Other expenses |
$0 |
Total expenses: |
$1,348,119 |
Income in Excess of Expenses |
$-302,283 |
Beginning Net Assets |
$1,503,386 |
Other Changes In Net Assets |
$0 |
Ending Net Assets |
$1,201,103 |
Total Liabilities |
$99,174 |
Total Assets |
$1,300,277 |