Pulmonary Fibrosis Foundation meets the 20 Standards for Charity Accountability.
Pulmonary Fibrosis Foundation (PFF) reports that it engages the pulmonary fibrosis community to develop programs for those living and working with pulmonary fibrosis. The organization's programs include the PFF Care Center Network, PFF Patient Registry, PFF Patient Communication Center, PFF Ambassadors, PFF Summit, disease education materials, and support groups. PFF Care Center Network connects medical centers throughout the United States that specialize in treating fibrotic lung diseases. The PFF Patient registry is a research-focused collaborative effort bringing together patients, healthcare providers, and researchers to advance pulmonary fibrosis research. The PFF Ambassador program seeks to empower patients, caregivers, and healthcare professionals to speak for the pulmonary fibrosis community and promote disease awareness. The organization states that it also funds research to support early-career investigators with the goal of advancing research that could translate into successful therapies for pulmonary fibrosis. In 2019, PFF reports that it had more than 2,000 patients enrolled in its Patient Registry, operated 68 Care Center Networks across the United States, awarded four research grants, and launched the awareness campaign, "Not Everyone Breathes Easy."
For the year ended June 30, 2019, Pulmonary Fibrosis Foundation's program expenses were:
PFF Patient Registry |
$2,394,724 |
Outreach and awareness |
$828,930 |
PFF Care Center Network |
$770,053 |
Education |
$612,475 |
Program support |
$543,141 |
Research |
$356,119 |
Support groups |
$352,817 |
Legislative advocacy |
$267,031 |
PFF Summit |
$170,952 |
Patient Communication Center |
$91,960 |
Total Program Expenses: |
$6,388,202 |
-
Chief Executive
William T. Schmidt, President and Chief Executive Officer
-
Compensation*
$385,400
-
Chair of the Board
George Eliades
-
Chair's Profession / Business Affiliation
Partner, Bain & Company, Inc.
-
Board Size
14
-
Paid Staff Size
35
*2018 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
Method(s) Used:
Direct mail appeals, Grant proposals, Internet, Invitations to fund raising events, Planned giving arrangements, Print advertisements (newspapers, magazines, etc.)
Fundraising costs were 16% of related contributions. (Related contributions, which totaled $10,674,801 are donations received as a result of fundraising activities.)
This organization is tax-exempt under section 501(c) (3) of the Internal Revenue Code.It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
The following information is based on Pulmonary Fibrosis Foundation's audited financial statements for the year ended June 30, 2019.
Source of Funds |
Contributions |
$4,417,750 |
Sponsorship |
$2,921,684 |
Program service fees |
$2,180,520 |
Special events, net |
$1,142,623 |
Interest and dividends |
$273,967 |
Other revenues |
$14,591 |
In-kind contributions |
$12,224 |
Realized and unrealized gain on investments, net |
($1,182) |
Total Income |
$10,962,177 |
- Programs: 71%
- Fundraising: 19%
- Administrative: 10%
Total Income |
$10,962,177 |
Program expenses |
$6,388,202 |
Fundraising expenses |
$1,709,594 |
Administrative expenses |
$907,272 |
Other expenses |
$0 |
Total expenses: |
$9,005,068 |
Income in Excess of Expenses |
$1,957,109 |
Beginning Net Assets |
$6,106,640 |
Other Changes In Net Assets |
$0 |
Ending Net Assets |
$8,063,749 |
Total Liabilities |
$2,850,718 |
Total Assets |
$10,914,467 |
Note: According to PFF's audited financial statement for the year ended June 30, 2019, the organization received $12,224 in donated software.